Vivien Jayne, the East Lothian Improving the Cancer Journey has asked me to contact you with the message below. It would be great if you could share this around your networks. I think Vivien would like to hear from as many people as possible.
Our new Macmillan-funded service, ‘Improving the Cancer Journey (ICJ)’ supports people affected by cancer and ‘go live’ across East Lothian in summer 2021. It will offer everyone who has been affected by cancer dedicated time with a Link Worker to think about ‘what matters’ with a focus on non-clinical issues.
We know that ‘navigating the system’ or knowing what’s out there can be hard, so our ICJ Link Workers will be on hand to listen to you, work with you to find out what is important and then help you to find the right support for you in your area. This might include help with money worries, getting around, managing symptoms like fatigue, as well as referring to specialist support services such as counselling to help manage the emotional impact of a cancer diagnosis.
There are ICJ services elsewhere in Scotland – click on the links below to find out more:
We are committed to developing ways to ensure that the voices of people affected by cancer are at the centre of everything we do. Our aim is to build a regional forum for East Lothian to help inform, advise and improve the service so that people living with cancer, their carers and their families can find the right support to help them manage the things that are most important in their lives.
We are therefore keen to speak to people who have been affected by cancer and who may wish to share their experiences and/or help gather the experiences of others, to help inform and influence the Improving the Cancer Journey service in East Lothian and beyond.
Interested? We would love to hear from you. You can contact us in the following ways:
- by email at firstname.lastname@example.org
- by phone on 07977 307 286 or 07929 784 315