Huntington’s disease: an enabling approach to supporting families

From Scottish Huntington’s Association

Applications are now open for learners from across Scotland, the UK and around the world for 2021 entry to a pioneering undergraduate module created in partnership with families impacted by Huntington’s disease.  

Delivered by University of Stirling in collaboration with Scottish Huntington’s Association, ‘Huntington’s disease: an enabling approach to supporting families’ is of particular interest to health and social care professionals who work with clients from the HD community, including carers and young people growing up in HD families. 

Learners will draw on current global research and practice in the field in order to provide improved care and support to people impacted by HD. The module begins on 13 September 2021 with a virtual one-day session, followed by 14 weeks of online learning and study. All learning will be delivered online and can be accessed at times to suit individual learners.

Course fees are £675 and the SCQF level 10 module carries 20 credits. To find out more, visit or email 

Sarah Fortune to replace Jim Lamond

Sarah Fortune, Head of Finance, has been named as preferred candidate for the Executive Director – Council Resources role.

The post is vacant following the retirement of Jim Lamond.

The appointment, which follows an external recruitment campaign, is subject to the usual pre-employment checks and a start date will be confirmed in due course. The appointment follows a meeting of the Chief Officer Appointment Subcommittee.

Sarah will report directly to Chief Executive, Monica Patterson, who said:

“I would like to congratulate Sarah on her appointment as Executive Director for Council Resources.

“As our focus on recovery from the COVID-19 pandemic sharpens, Sarah will work closely with myself, and other members of the Executive and wider Council Management Team, in continuing to oversee delivery of high-quality and efficient services to the communities of East Lothian.

“I wish Sarah every success in her new role and look forward to working with her in the months and years ahead.”

EU Settlement Scheme – the deadline has now passed

Update from COSLA

Wednesday, 30 June 2021, was the deadline for applications to the EU Settlement Scheme (EUSS) for EU, EEA and Swiss citizens and their family members, who were resident in the UK by 31 December 2020.

More than six million applications were made to the EU Settlement Scheme before the 30 June deadline, marking an astonishing success in protecting the rights of EU, EEA and Swiss citizens in the UK.

The statistics released today (Friday 2 July) show there were 6.02 million applications made to the scheme by 30 June with 5.1 million grants of status. There have been more than 5.3 million applications from England, 291,200 from Scotland, 98,600 from Wales, and 98,400 from Northern Ireland.  

The surge in applications, including more than 400,000 in June alone, means that there are around 570,000 pending applications. The Government has repeatedly assured those who applied before the deadline that they will have their rights protected until their application is decided, as set out in law, and they have the means to prove their protected rights if needed. 

A full statistics report highlighting details of applications made by the end of June 2021 will be published in due course.  

The Home Office would like to thank you for all your support throughout the scheme. Your work has been invaluable in reaching EU, EEA and Swiss citizens and their family members, and helping them to secure their rights in UK law.

From Thursday 1 July 2021, EU, EEA and Swiss citizens and their family members are now required to obtain a valid UK immigration status to be in the UK, either through the EUSS, if they were resident in the UK by 31 December 2020 or are a joining family member, or through a valid visa.

EU, EEA and Swiss citizens can expect to be asked to show their digital status to prove their right to work or their right to rent to landlords in England. Other departments, such as HMRC, DWP and the NHS, will have automatic access to their status to check a person’s eligibility for free healthcare, benefits and access to public funds.

Pending applications

Anyone who made an application by the 30 June 2021 deadline will have their existing rights protected, pending the outcome of their application. Applicants are issued with a Certificate of Application, which can be relied on to evidence their rights.

Their Certificate of Application will be available in their view and prove account or will be sent to them by post. Landlords and employers can also use the Home Office view and prove service to confirm protected rights for an individual.

The Home Office will contact any applicant where we need further information to progress their application.

How to access and update digital status

You can view your EUSS status online, via the view and prove your immigration status service.

Please refer to the following guide for further information about using your digital status: ‘Your immigration status: an introduction for EU, EEA and Swiss citizens’.

Switching from pre-settled status to settled-status

If you hold pre-settled status, you can apply to switch to settled status as soon as you’re eligible. This is usually after you’ve lived in the UK, the Channel Islands or the Isle of Man for 5 years in a row (known as ‘continuous residence’).

You do not need to have held pre-settled status for 5 years before you can apply to switch to settled status. If you have spent more than 6 months outside the UK in a 12-month period, you may not be eligible for settled status.

To switch, you must apply to the EUSS again before your pre-settled status expires. For further information, please refer to the guidance available on GOV.UK.

Joining family members

Family members of any nationality of EU, EEA or Swiss citizens who were resident in the UK by 31 December 2020, can apply at any time, where the family relationship was formed by that date (except where a child was born or adopted after it) and continues to exist. They may be able to apply to the EUSS from outside the UK or they may need to apply for an EUSS family permit to come to the UK and then apply to the EUSS once here.

Applying for children

EU, EEA or Swiss citizens who were resident in the UK by 31 December 2020 must apply to the EUSS for their children who are not British citizens. For further information please refer to the guidance available on GOV.UK.

If they are expecting to have a child (or have given birth since 1 April 2021), then the child will also need to have an application made on their behalf to the EUSS within 3 months of their date of birth. However, if either of the child’s parents had settled status under the EUSS (or another form of indefinite leave to enter or remain) before the child was born, then they don’t need to make an application on their behalf, as the child will be a British citizen.  

Before you travel – crossing the UK border after 30 June 2021

Individuals with pre-settled or settled status under the EUSS should ensure that they update their online account with all valid travel documents (such as passports or national identity cards) that they hold and intend to use for travel, to avoid any unnecessary delays at the border. They can do this online by using the view and prove service, which enables individuals with digital status to keep their travel documents updated.

Applications made after 30 June 2021 deadline

In line with the Citizens’ Rights Agreements, there remains scope for a person eligible for status under the EUSS to make a late application to the scheme where there are reasonable grounds for their having missed the deadline.

We have published non-exhaustive guidance on reasonable grounds for missing the deadline on GOV.UK.

Where a person did not apply before the deadline, they must make a valid application online or on the relevant paper application form – and provide information with the application setting out their grounds for applying late.

The Home Office will continue to look to grant status, rather than for reasons to refuse. A flexible and pragmatic approach will be taken in considering whether there are reasonable grounds for the person’s failure to apply by the deadline.

If someone without status is encountered who may be eligible for it, they will be provided with a written notice giving them an opportunity to apply to the scheme, setting out their reasonable grounds for missing the deadline, normally within 28 days, and signposted to the support available.

Important information

We will be publishing new information guides on GOV.UK. We will share these with you over the coming days. However, information on late applications can be found on GOV.UK and information for community groups can be found on GOV.UK here.

New social media assets reflecting the deadline passing are also available on our Brandworkz platform.

We will continue to send you regular updates on the scheme with the latest information on scheme performance, new communications materials and the new points-based immigration system.

Recruitment underway for Chair of Community Justice Scotland

Image result for community justice scotland

The role of Chair of Community Justice Scotland has now gone live for recruitment.
Community Justice Scotland is an ambitious organisation which is focused on promoting positive messages about people who are in contact with the criminal justice system and the need for a wider range of services to offer them support to address the underlying reasons for their offending behaviour and prevent further offending.  The role of CJS Members, including the Chair, is to provide leadership, direction, support and guidance to ensure that CJS delivers and is committed to delivering its functions effectively and efficiently with the aims, policies and priorities of Scottish Ministers. 

Find more information about the role: Scottish Government – Public Appointments (

Invitation to Compassionate Communities Fringe by the Sea event with Richard Holloway and Dr Kathryn Mannix

Home | Compassionate Communities Enabling community based palliatiative  care.

Compassionate Communities team are delighted to announce that there will be a North Berwick Fringe By The Sea ‘in conversation’ event, on the 12th August 3 – 4.30 pm with Richard Holloway and Dr Kathryn Mannix, on her pioneering book, ‘With the End in Mind’. Tickets will be available online from 1st of July. Prior to this event there will be an opportunity to join the North Berwick Compassionate Community team, to discuss themes from the book, at a lunchtime book club on the 9th August at one of the Fringe by the Sea venues.

About the author: Dr Kathryn Mannix has studied and practiced palliative care for thirty years, she interlinks her experiences as a care giver with those of her patients and families and reacquaints us with the universal, but deeply personal, process of dying.

Places are limited to only 12 so if you are interested in attending this event, can you let us know by emailing We will then forward you a link to a free ticket.  Every participant for the book group will receive a free copy of the book prior to the Book Group.