Find out more about the Herbert Protocol

Herbert Protocol for Dementia in Berkshire

The Herbert Protocol is a nationally recognised scheme focused on people living with dementia who may be at risk of going missing. The main aim of the Herbert Protocol form is that it is completed in advance so that significant information is recorded and readily available for police in the event of someone going missing. It can help the police to find someone who goes missing more quickly.

People who care for someone with dementia can fill out a form with details about the person including where the person grew up,  favourite places, and a picture of the person with consent to share this on social media should it be required.

The form is then kept somewhere safe in the person’s household. If the person goes missing, the form helps police to quickly access important information to help find them. Find out more and download the form https://www.scotland.police.uk/your-community/the-lothians-and-scottish-borders/

Purple Alert

A community minded app for people with dementia if they are missing

Purple Alert is a free app designed by people living with dementia and carers, Alzheimer Scotland staff, Police Scotland, Social Work, Dementia Friends Scotland, Health and Social Care Partnerships and Telecare Services.

After successfully reach our milestone of 10,000 downloads, Purple Alert has gone through a major design and functionality upgrade. While the main functionality is still helping finding a person with dementia if they’re lost, the new app serves tailored content to users, depending on where you are in Scotland or when you use the app

https://www.alzscot.org/purplealert

Further reading

Thank you to all East Lothian’s Shared Lives carers

This week is Shared Lives Week and we are celebrating the contribution our Shared Lived Carers make throughout the year.

Shared Lives is is a community/family based model of care and support that provides long term, short breaks and day support within people’s homes. Arrangements range from offering support for a few hours a week to providing a long term home. Shared Lives Carers are self-employed and receive a fee for their work. Shared Lives is run by East Lothian Health and Social Care Partnership. It is registered with the Care Inspectorate.

East Lothian Integration Joint Board Vice-Chair Councillor Shamin Akhtar said:

‘Most of us think that home, family and friends are the most important things in life and this is also the case for people with support needs. Our Shared Lives service provides this for people who may otherwise live much more isolated and lonely lives. Most people are familiar with the fostering model of care and support for children.  Shared Lives is a similar service which supports adults and older people

‘Our Shared Lives carers open their lives and their homes to people with support needs. They really welcome people into their families, big or small, and provide support, stimulation, affection and fun. They make a huge difference and their contribution has been especially important during the pandemic, in helping people through difficult and worrying times.

‘It’s an incredibly worthwhile thing to do. I know when people read about something like this, they often think “I might like to do this too.” So, if you want to find out more, please do visit our new Shared Lives page to find out from carers and adults who are part of Shared Lives what the scheme means to them.  We’d love to talk to you if you think it’s something that you would like to do.

I can’t thank our Shared Lives carers enough. They are wonderful people and they make a real difference to the people they support and their wider families too. You are fantastic – thank you so much.’

If you would like to speak to someone about Shared Lives, email us at sharedlives@eastlothian.gov.uk or phone our Shared Lives Co-ordinator 01620 827 280

PS – If you want to find out more about Shared Lives from the point of view of someone who uses the service, see Abby’s interview in the East Lothian Courier, where she talks about Shared Lives and being a Shared Lives ambassador for the national body Shared Lives Plus.

Thank You Day – 4 July 2021

To see the video, click here – https://youtu.be/vXDf0umn4lg

On Sunday 4th July, organisations and individuals across Scotland and the UK are coming together to say Thank You to everyone who got us through the challenges of the pandemic so far.

In Scotland, Chest Heart & Stroke Scotland’s supporters are arranging their own Thank You Day Tartan Tea Parties across the country – and we’d love for our NHS and Social Care colleagues to join us in celebrating the day.

Thank You Day began with a proposal from just 13 individuals – including stroke survivor Debbie Matthews in Perthshire – and is now supported by hundreds of different organisations, celebrities, religious leaders, sports stars, councils, schools, business and communities across the country.

Can you show your support for Thank You Day by:

  • Hosting your own Tartan Tea Party – Sign up to host a Tartan Tea Party (virtually or check local Covid guidelines) and get exclusive recipes from celebrity chef Tom Kitchin to make your party extra special! www.chss.org.uk/thank-you-day 
  • Turning social media tartan on Thank You Day! On 4th July, wear tartan, take a selfie with a cuppa and say who you’re thankful to. Remember to share using #ThankYouDay #TartanTeaParty and don’t forget to tag @CHSScotland!

Our aim is for as many people as possible to be involved, in whatever way they would like, so that everyone who deserves it gets a thank you and the whole of the country gets together.  After the challenges of the last 16 months there are so many people across Scotland’s communities who have been doing what they can to make a difference to people’s lives, from NHS workers through to volunteers, and Thank You Day is our chance to celebrate everyone who has made a difference.

Work on Harbours Medical Practice extension set to start in early July

Boost for patients and GPs with Harbours Medical Practice extension date  confirmed | East Lothian Courier

Work on the £4.1m extension and refurbishment of Harbours Medical Practice is getting underway early next month.

The practice was built and completed in 1980.  The new project will see the building being extended to meet the needs of the growing population in the Cockenzie and Port Seton area and the demand for a wider range of services.

The project will see the building of additional Consulting Rooms and Treatment Rooms and the existing building will be refurbished throughout so that clinical services can be delivered in an environment which is appropriate and fit for purpose.

East Lothian Health and Social Care Partnership Operations Manager Iain Gorman said:

‘I know this is something that patients have been looking forward to for some time and it’s great to see things getting underway. We wanted to let people in Cockenzie and Port Seton and our patients in neighbouring villages know that they will be seeing the building work under way very soon. 

‘The practice will continue looking after patients throughout the refurbishment and we hope the work will cause minimal disruption to patients and neighbours. I am really looking forward to seeing the new-look Harbours Medical Practice.

‘This development is very much in line with our continuing drive to provide people with access to a wide range of primary care services locally, bringing care closer to home and helping to relieve the pressure on our services.’

Jane Johnston, Practice Manager at Harbours Medical Practice added:

‘This is a really exciting step and everyone at Harbours is looking forward to having premises which are fit for purpose.’

Community Payback Order Annual Report

This report was compiled before the Covid-19 Pandemic, and is what Justice Social Work Services aims to achieve again. Community Payback Orders include focused interventions based on risk and need, as well as delivering Unpaid Work. We hope to use what we have learnt in 2020 about human resilience and adapt how we respond to the needs of our communities and those involved in the justice system to improve our service in the future. If you’d like to know more, check out the latest report at Reports and Bulletins | East Lothian Council.

NHS Inform – It’s OK to ask campaign

NHS Inform is about to launch a campaign to support patients and healthcare professionals in having positive conversations about care and treatment. The campaign will run across the NHS in Scotland from 11 May 2021 and has been devised with input from NHS clinicians.

The campaign message is “It’s Ok to ask.” We know that when people understand what’s going on with health, they can make better decisions around care and treatment.

You can find out more on the NHS Inform website at https://www.nhsinform.scot/itsoktoask, where you will also find a patient leaflet in English and translations.

Alzheimer Scotland Mid and East Lothian Update – Wednesday 12th May 2021

Michael Michael Huddleston, Dementia Advisor, Edinburgh & Lothians

I hope you are keeping well and are looking ahead to the further easing of restrictions in Scotland from Monday 17th May. I’m sure it will be very emotional, cathartic change for many of us.

Please see below for this week’s updates:

  • Knowledge is Power (Scotland): The booklet found here was written by people living with dementia, for people living with dementia with the support of DEEP (The UK Network of Dementia Voices) and funded by The Life Changes Trust. It includes a wealth of information and advice useful to people living with dementia and their families/ carers in Scotland
  • Capital Theatres have shared the second episode of their audio play, “When The Sun Meets The Sky”. The first and second episodes, co-produced and performed in by people living with dementia, can be listened to here: https://www.capitaltheatres.com/raise-the-curtain/radio-play
  • Sandra Davidson from Midlothian’s Communities and Lifelong Learning is running a weekly “Midlothian Memories” group on Wednesdays, 1.30-3.00pm. The group will explorewhat it was like to live, work and play in yesteryear Midlothian, looking at topics such as family life, working life, school life, leisure, and differences in life from 1940s to now. If you’re interested in getting involved, please email: CLL@midlothian.gov.uk
  • Midlothian Community Learning and Development (CLD) Plan 2021/24: Work is underway to develop the CLD plan for the next three years. The following survey is an opportunity for existing and prospective adult learners to inform Midlothian CLD about their training and development needs, including the types of course you would be interested in and how you would prefer to access learning: https://www.surveymonkey.co.uk/r/25CDQF7

Alzheimer Scotland continue to provide support, information and advice primarily by telephone and video consultation. Please do not hesitate to get in touch if you have any questions or concerns we can support you to address.

Take care

Michael Michael Huddleston
Dementia Advisor  | Edinburgh & Lothians  | 0131 654 1114  | 07831 859490 
Alzheimer Scotland, 3 Edinburgh Road, Dalkeith, EH22 1LA

Vaccination team and resource centre work together to support people with learning disabilities

Port Seton Resource Centre

Vaccination centres can be a bit overwhelming for some people with learning disabilities. ELHSCP’s vaccination team have been working with staff at Tynebank and Port Seton Resource centres to try to make the process as un-scary as possible. They have been able to hold two clinics so far, one in Tynebank and one in Port Seton. And it wasn’t just centre users who attended but also people referred from service providers and GPs.

Shannon Leslie, Programme Manager, Adult Community, said:

‘Vaccination centres, quite rightly, operate in a clinical environment but it’s one that can be very stressful for people with learning disabilities. Our learning disability support staff and ELHSCP’s vaccination team recognised this and developed this programme to deliver vaccinations safely in much more homely settings.

‘People may still find the uniforms and the process a bit scary to start with, but we have managed to mitigate this by having music, iPads for playing games and we have even sung to people personally when we didn’t have their favourite music to hand. This has worked really well and we managed to vaccinate everyone who came.

‘I think it’s a really great example of integrated working that puts the person first and works with them to make a difficult experience much more manageable.’

She added:

‘A further benefit of this approach is that we have made contact with new people, previously unknown to learning disabilities staff. This will let us put them in touch with advice and support that they might have been missing out on.

Big thanks to the Filling Station for making International Nurses Day 2021 a day to remember

As you know, yesterday (12 May) was International Nurses Day and Lorraine Cowan, Tracy Leishman and Fiona Gallagher from the senior nursing team at East Lothian Community Hospital were keen to do something to mark the occasion this year of all years.

And it seemed that a scone for all would very much be in order.

Fiona phoned The Filing Station in Prestonpans to see if they could fulfil an order for 500 scones. Filling Station manager Carolyn came back quickly to say that they would be delighted and that they would do a special rate for scones with clotted cream and jam. However, when Fiona turned up at the Filling Station she was told that the scones would be free, and that the Filling Station would deliver them in their van to East Lothian Community Hospital for onward distribution. This was extremely fortunate, as Fiona could quickly see that her car would be far too small.

Fiona said:

‘It was so kind.

‘The logistics were huge but scones went to Belhaven and the Edington, and District Nurses and Health Visitors across East Lothian. They also went to all the wards in East Lothian Community Hospital, the Mental Health Teams, the Midwives, the Hospital@Home Team, the Vaccination Team, the Hospital 2 Home Team, the Community Treatment and Access Service (CTACS), Site and Capacity, the Care Home Team, the Palliative Care Team and the Endoscopy Team. A large number also went to Musselburgh Primary Care Centre for Care When It Counts, CTACS and all the other nursing teams there. ‘I think I got everybody – we really tried to unite every nurse in our teams across the county with their scone.

‘I can’t thank Carolyn and everyone at the Filling Station enough for making this an International Nurses Day to remember.’

Becky Todd joins ELHSCP Justice Services


Becky says:

I am a newly qualified social worker. Through my work as a support worker, I quickly learned that I wanted to develop my training and knowledge within social care. My previous post was at Harmeny Education Trust. This is a residential school working with children with complex social and emotional needs.

Before this I completed a six month placement as a student social worker within a female justice service with Edinburgh Council. This placement made me recognise that I wanted to continue my professional career within justice services, helping people achieve positive outcomes.

In 2016, I graduated from the University of West of Scotland with a degree in Contemporary Screen Acting. I was very passionate about the arts and enjoyed being creative but it turned into a hobby rather than a career. I recognised that I wanted to work with people and be a positive influence within their lives. I went on to study social work at Edinburgh University and graduated with a Masters in 2020.