Dunbar Primary School are supporting Macy, a P6 Child in our school, who is hoping to have an operation in America to help improve her scoliosis. The operation will cost the family over £130,000.
Please find below the link for donating to the fund for Macy along with some more information on her illness and the operation she is hoping to get. The school are really keen to support her and her family and have already started raising money for the fund. You can donate on the site below or by clicking on the image.
Macy has just had her 10th birthday. To say she is active is an understatement. She likes gymnastics, trampolining & hip-hop. She likes riding her bike & swinging from trees. She is daring, adventurous & has no fear. Flexibility & mobility are very important to her, but for the last three years, Macy’s activities have been severely restricted.
Macy was diagnosed with scoliosis at six years old, with three curves in her spine, each measuring from 40 to 48 degrees. For three years, she wore a brace 20 hours a day, to prevent her condition from becoming worse. While Macy coped well with this to start with, by year three she lost her ability to cope. Bracing is widely acknowledged to produce immense psychological stress and in common with many other brace wearers, at times she felt ashamed, scared, angry and stressed. It made her feel different from her friends at a sensitive age, was restrictive and often uncomfortable. Her parents sought a second opinion in August 2016 and were advised that given the negative impacts on Macy’s emotional well-being, she should discontinue brace treatment. Her condition has since deteriorated rapidly & she needs surgery now, before she has another growth spurt. In such cases, the NHS perform a spinal fusion.
After countless sleepless nights & weeks of research to find an alternative treatment, her parents found their miracle – vertebral body tethering or VBT.
Unlike fusion, it allows for continued growth & mobility of the whole spine. It is the only procedure which will straighten Macy’s spine while allowing her to grow & remain flexible. Surgeons place screws in the affected vertebrae & attach the screws to a flexible cord to pull the spine in a straighter position. This realigns the spine so it can continue to straighten with growth & maintain flexibility. The surgery is less invasive than fusion, involving a five-inch scar as opposed to a full spine incision down the middle of the back. While this is desirable cosmetically, it also means less blood loss, less risk of infection & faster recovery time, as there is less muscle, bone & tissue damage.
As fusion currently is the only option in the UK, the only hope for Macy and her family is to go to America for VBT but this needs to be done as soon as February 2017.
If you can help in any way click the link below.
Helen Gillanders, Head Teacher