Dystonia is the term used to describe uncontrollable muscle spasms caused by incorrect signals from the brain. The muscle spasms force the body into unusual and sustained movements and postures. This can affect many different areas of the body.

Around 1 in every 200 people either has dystonia themselves or has a close family member affected so it is likely you know someone affected. Click here to learn more.

Do you know who it is? It is possible they don’t either!

As it is estimated that 30-50% of people with dystonia are not diagnosed. Doctors often don’t recognise the symptoms and many people are being told they have a psychological problem.

Possible signs that someone has dystonia include:

Neck dystonia: The neck is twisting sideways or being pulled backwards or forwards involuntarily

Eye dystonia: Uncontrollable blinking or the eyelids forcing themselves shut

Hand dystonia: The hand makes strange, unintentional movements when writing or playing an instrument

Generalised dystonia: Abnormal, twisted postures of the hands or arms